The Dementia Caregiver’s Guide to Non-Verbal Communication

Non-Verbal Communication tips for Dementia Caregivers

Caring for someone with dementia isn’t easy, and one of the biggest challenges is communication. As dementia progresses, words can slip away, making everyday conversations feel like uphill battles. But here’s the truth: connection doesn’t end when verbal language fades.

That’s where the power of non-verbal communication comes in.

For dementia caregivers, learning how to combine both verbal and non-verbal communication is essential. A soft tone, a gentle touch, or even eye contact can cut through confusion and build trust. Whether you’re just starting your journey in dementia care or looking to sharpen your communication skills, understanding these subtle cues can change everything. 

Because when words fail, presence speaks.

In today’s article, we’ll explore how to communicate effectively with dementia patients, the difference between verbal and non-verbal communication, and practical tips you can use to strengthen those wordless connections.

What Is Non-Verbal Communication?

Nonverbal communication is how we communicate without talking, such as a friendly wave, a big grin, or a pat on the shoulder.

For someone with dementia, whose speech might slip away over time, these little signals are gold. The Alzheimer’s Society notes that over half of folks with dementia hit communication roadblocks later on. That’s where nonverbal cues step up as a lifeline. It’s more than a backup plan, it’s about comfort. When words dry up, a simple gesture can soothe rattled nerves. It cuts the frustration for them and you.

How Does Dementia Affect a Person’s Ability to Communicate Non-Verbally?

As dementia advances, it takes a toll on cognitive functions, making it harder for the brain to handle verbal communication. Patients often start to lean more on non-verbal cues like facial expressions, gestures, and body language to express their needs and feelings.

A Shift Toward Non-Verbal Communication:

  • Facial Expressions: A smile, a frown, or a furrowed brow can say a lot about how someone is feeling.
  • Gestures: Simple actions like pointing or waving can help bridge the gap when words just aren’t enough.
  • Touch and Presence: Holding hands or a gentle touch can provide comfort, especially in the later stages when verbal communication becomes more challenging.

For caregivers, being able to recognize and understand these non-verbal signals is essential for delivering compassionate and effective care.

How Dementia Affects Communication

“Person-centered care is a cornerstone of quality dementia care. We care for a person first, not a diagnosis.”

– Kim Warchol, President & Founder of Dementia Care Specialists, Crisis Preventions Institute 

Dementia rewires how people connect, turning everyday talks into something trickier. Early on, the signs are minor, such as forgetting a word here and repeating a story there. As it progresses, you’re leaning more on gestures, looks, and touch to get through. Knowing what’s changing helps you roll with it and keep caregiving effective. Here’s how it plays out, with some pointers to guide you.

Early-Stage Challenges 

In the beginning, language hiccups are subtle but real. They might pause, hunting for the right word, or toss out “that thing” instead of “chair.” A 2019 Alzheimer’s Society report pegged 6 out of 10 people with early dementia dealing with this, and it can rile them up. They might ask the same question twice, not realizing they’ve already gone there.

Say you ask, “What’d you eat for breakfast?” They might fumble with, “Uh, that stuff,” meaning “toast.” Their puzzled look tells you they’re stuck. A little patience goes a long way. Nod, maybe suggest “toast?” and you’ve smoothed it over.

Moderate-Stage Shifts 

By the middle stage, things get messier. Sentences tangle, and they might lose the thread halfway through. The 2020 study by the Alzheimer’s Association showed that 70% of people hit a wall with communication, answering off-topic or not at all. Ask about their day; you might get a tale from 20 years back, memories and words slipping together.

Hearing or vision trouble can pile on, too. A 2019 study published in BMC Geriatrics found that 4 in 10 dementia patients deal with sensory loss, missing their words if they can’t hear or see well. They might shut down or get antsy if they miss your question. Pointing to a glass for “water?” can cut through that noise.

Some even flip back to their first language, a curveball if you don’t speak it.

A 2018 study by Mendez, M. F., & Lim, G. T. said 15% of bilingual folks do this, leaving you guessing. That’s when a reassuring nod or a gentle touch step up to keep things steady.

Late-Stage Reliance on Non-Verbal Cues 

In advanced dementia, speech often vanishes. Dementia and communication shift almost entirely to nonverbal signals. Dementia patients may only grunt, moan, or remain silent, making communicating with them challenging. Yet, they still sense emotions.

For example, a caregiver might say, “I’m here,” but gets no reply.  Here, a warm smile while holding their hand, a simple act of blending words and touch, can invite a peaceful glance or a gentle squeeze in response. Dementia care training emphasizes these cues, teaching caregivers to “listen” with their eyes. 

Cognitive decline drives this shift. Processing words becomes overwhelming, as the brain struggles to decode meaning. Moreover, language centers deteriorate, pushing dementia patients toward instinctive signals like facial expressions. Communication difficulties in dementia peak here, but dementia caregivers can adapt by mirroring emotions or using slow, deliberate gestures.

According to a 2021 study published in the Journal of Alzheimer’s Disease and data from the Alzheimer’s Society, this shift is due to the brain’s reduced ability to process complex signals—verbal or otherwise.

Emotional and Behavioral Impacts 

Dementia doesn’t just affect words, it alters emotions. Dementia patients may misread tones or faces, leading to agitation. A rushed “Let’s go” might sound angry, even if it’s not. Most dementia patients react strongly to perceived negativity, escalating dementia communication problems. In these situations, caregivers must stay calm, using soft tones to soothe.

Behavioral changes, like pacing or withdrawal, also signal needs. A clenched fist might mean pain; a turned head, disinterest. Dementia training teaches dementia caregivers to interpret these as part of communication skills for dementia, turning frustration into understanding.

Why do dementia patients become non-verbal?

Dementia patients often lose their ability to speak as their cognitive and neurological functions decline. As the condition advances, the damage to the brain’s language centers makes it harder for them to form words or even understand what’s being said. This shift leads them to rely more on non-verbal cues like gestures, facial expressions, and body language to communicate their needs and feelings.

Why Non-Verbal Communication Matters for Caregivers

As dementia advances, it can become harder for individuals to communicate verbally, which is why non-verbal cues become so important for caregivers. By understanding and utilizing gestures, facial expressions, and body language, caregivers can keep meaningful connections with their patients. This is particularly vital since some dementia patients may eventually lose their ability to speak altogether, emphasizing the need for caregivers to adjust to these changes to ensure comfort and effective communication.

The communication changes explained above demand flexibility. Dementia care isn’t static; each stage requires new approaches. Early on, patience with word-finding helps. Later, non-verbal communication with dementia patients becomes the focus. Dementia care training equips caregivers with tools to navigate this, reducing stress for both parties.

A study published in Gerontology & Geriatrics Education concluded that training in-home supportive services providers in California improved their confidence and competence in caring for individuals with Alzheimer’s Disease and Related Dementias (ADRD).

Examples of Verbal and Non-Verbal Communication in Dementia 

Examples of verbal & non-verbal communication in dementia care

Practical Tips for Non-Verbal Communication with a Dementia Person

“While theoretical knowledge is important, caregivers benefit most from training that allows them to apply techniques in realistic scenarios.”

– Debra Callender, Dementia Care Specialist & Physiotherapist  

Ready to improve your communication skills for dementia? These detailed tips, rooted in dementia care training, are for dementia caregivers. They’re practical and thorough, with examples to guide you.

  • Use Touch Thoughtfully

    Touch speaks when words can’t. If they’re okay with it, a hand on the arm or a hug offers reassurance. Most dementia patients calm down with a gentle touch. But it’s personal. Some dislike it due to past trauma or confusion.

    How to Do It: Start small. Rest your hand lightly on theirs while chatting. Watch their face. Do they smile or pull away? If they tense up, stop. If they relax, keep it light. For example, during a meal, a pat on the back can say, “You’re doing great.”

    Scenario: Your loved one is anxious. You sit beside them, hold their hand, and stroke it gently. They sigh and settle. Touch worked.

  • Get to Eye Level

    Standing over someone can feel threatening. Sitting or kneeling at eye level shows respect. It’s critical to know how to communicate with dementia patients. Eye contact builds trust, but don’t stare; it can unsettle them.

    How to Do It: Pull up a chair or crouch down. Match their gaze briefly. Keep your posture, open arms uncrossed. If they’re in bed, sit on the edge of a low stool. For instance, kneel and point outside while smiling when asking about a walk.

    Scenario: They’re restless in a chair. You kneel, look them in the eye, and nod toward the door. They nod back, ready to move.

  • Align Body Language

    Your body must match your message. A tense face saying “relax” confuses. Smiling while recalling a happy memory reinforces it. Dementia patients read your cues, even if words blur.

    How to Do It: Practice consistency. If you’re offering comfort, soften your face and shoulders. Avoid sudden moves, as they startle. When sharing a fun story, grin and lean in slightly. Try this: mirror their mood first, then guide it upward with your expression.

    Scenario: They’re frowning. You mirror their expression, then slowly smile while patting their hand. Their frown lifts; they’re following you.

  • Watch Your Tone and Pace

    A soft, slow voice soothes, while loud or rushed tones upset. Pace matters; too fast speech overwhelms.

    How to Do It: Lower your volume. Stretch your words slightly. Pause between sentences if they’re agitated, hum, or whisper. For example, quietly saying “Let’s rest” while pointing to a chair can settle them. Avoid shouting; it’s jarring.

    Scenario: They’re pacing. You say “Sit here” softly, pausing after each word, and point. They slow down and sit.

  • Try Visual Aids 

    Visuals cut through fog. Pictures, cue cards, or apps clarify needs. A photo of soup can mean “lunch?” Tech like “MealTime” shows food options, sparking appetite. It’s a game-changer for dementia non-verbal communication.

    How to Do It: Create a binder with images of meals, clothes, and activities. Point to one and watch their reaction. Use a tablet for variety. If they point back, you’ve got it. Try showing a sun picture to suggest a walk; they might nod.

    Scenario: They’re hungry but silent. You show a card with bread, then soup. They tap soup. Lunch is solved.

  • Encourage Creative Outlets 

    Art lets dementia patients express what’s inside. Drawing, singing, or drumming taps into emotions. Local dementia training groups offer these.

    How to Do It: Set up simple supplies like crayons and a tambourine. Join them. Hum a tune and hand them a drumstick. If they draw, ask about it with gestures. Search your dementia directory for classes; they’re social, too.

    Scenario: They’re bored. You play a song, tap a beat, and offer a shaker. They join in, smiling.

  • Read Their Signals 

    Dementia nonverbal communication is a dialogue. A clenched fist might mean discomfort, while a relaxed lean shows peace. Learning their cues keeps them engaged. It’s about listening with your eyes.

    How to Do It: Observe daily. Does a head tilt mean “yes”? A grimace “no”? Write it down. If they fidget during a chat, switch topics, or offer a break. For example, if they rub their eyes, they’re tired, and the guide can help them rest.

    Scenario: They squint and turn away. You pause, offer water, and they sip. You read it right.

Final Thoughts

Caring for someone with dementia is a journey of patience and adaptation. As words slip away, non-verbal communication becomes a powerful way to connect, comforting dementia patients when language fails. For dementia caregivers, mastering communication skills through touch, gestures, or a warm smile transforms challenges into moments of understanding. Dementia care isn’t just about meeting needs and preserving dignity and love. Every small act you take in communicating with dementia patients matters; it’s a step toward a stronger bond.

Dive into dementia care training with Learn2Care to build your confidence.

Related Blog Posts –

Dementia Care Basics for Seniors: Practical Tips for Daily Routines
Dementia Training for Caregivers: Everything You Need to Know 

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