Caring for individuals with dementia presents a unique set of challenges due to the progressive decline in cognitive function caused by the conditionDementia impacts memory, thinking, and the ability to perform daily tasks, making caregiving both emotionally and physically demanding. As caregivers tackle this journey, it becomes crucial to understand the dynamics of the disease and adopt strategies that can help ease the burden on both the caregiver and the individual living with dementia.
To shed more light on the challenges and strategies involved in dementia caregiving, Nicole Smith, an experienced caregiver, shares valuable insights from her extensive experience. These include understanding the evolving reality of dementia patients, applying empathy, and continuously learning to stay updated with best practices in dementia care. Nicole’s knowledge provides a roadmap for caregivers to navigate the complexities of dementia care with patience and compassion.
Understanding the basic premise of dementia is the first step in providing care for someone with dementia. The brain is broken and cannot process memories, language, or daily tasks as it could before the disease began to affect cognitive function. A person with dementia should never be corrected, reprimanded, reminded, or chastised for forgetting that their spouse has passed or not remembering someone’s name. Their reality has shifted, and our caregivers’ job is to meet them where they are and help them feel safe and secure through practiced interaction techniques.
Different types of dementia affect various areas of the brain. Every person is unique; the same type of dementia may present differently in individuals. A person with dementia is living in their reality because their thought process is damaged. We can use tools to join them in their reality and keep them comfortable.
Improvisation is one of the most effective techniques used in caregiving. Adopting the classic “yes…and” combo used in improv helps affirm and redirect the conversation instead of correcting the person. For example, someone with dementia might express a desire to go home. An improv response could be, “Yes, home is a special place, and what is a favorite meal you often eat at home? or What do you like best about home?” We are encouraging them to expand on a feeling in a way that affords them room to express themselves without the limitation of recalling something too specific. Instead of correcting, we can redirect the conversation.
Empathy comes from a place where we can relate to each other as humans without judgment. Some people are more naturally empathetic, and some need to consciously center themselves and be more mindful about who they are interacting with. Patience is tough for many people, especially when you hear the same story, request, or question for the umpteenth time within three minutes. We are more patient when we are grounded and take care of ourselves to have the energy and capacity to care for others. Easier said than done. Adjusting our mindset and temporarily shelving our worries while caring for others can help.
– Nicole Smith
Observation skills are essential for caregivers to practice when caring for people with dementia. Communication skills are compromised in many people with dementia, so paying attention to changes in behavior outside of that person’s typical demeanor can offer clues as to what that person may need or want in a particular situation. Learning about common paranoia, accusation, and denial expressions helps calm someone worried or agitated. Sundowning is common in dementia, so being aware and preparing the environment with calming music, snacks, pets, or favorite items during that time of day may thwart a stressful situation.
I subscribe to various newsletters from providers whom I respect and trust. I follow others on Instagram and social media to be aware of current conversations that are getting attention. I also attend conferences, read books, listen to podcasts, and continue to learn as much as I can about aging, prevention, dementia, and death. We are all working together to help each other and provide the best care possible.
As dementia continues to affect millions of people worldwide, caregivers’ roles become more crucial than ever. Nicole Smith’s insights emphasize the importance of empathy, observation, and creativity in ensuring those with dementia can maintain a sense of comfort and security. Whether you’re a new or experienced caregiver, adopting the right techniques and staying informed about the latest research can significantly improve the quality of care provided.
Nicole Smith, a passionate communitarian, has dedicated her life to advocating for both personal and social responsibility. Rooted in Midwestern values and having lived in nine different states, Nicole’s sense of community extends globally. She raised five children in Arizona, a place she now calls home, where she celebrates volunteerism and connection. As the host of the "Happy to Help" podcast, Nicole has featured over 100 inspiring non-profit professionals and community leaders, consistently emphasizing the fulfillment that comes from helping others.
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